Update: Rob moved back into our parents’ house right before our first baby was born. That story is told here.
Update 2: Our baby girl is now a healthy 2-year-old and we live in a (mostly) non-toxic house that we rent on our own, so we can manage our environment.
I am the wife of an MCS/Mold/EMF-sensitive husband, Rob. We are expecting our first child to be born on November 15, and we are still currently looking for safe permanent housing ever since my husband got sick in our moldy home around 2012.
His health got better once we moved into another less moldy house with his parents. However, the house we’ve been in has had mold in the basement that up until recently (we didn’t think) was bugging us. This year things got worse again for Rob as the condition (and thus mold-level) of his parents’ house worsened through humidity and lack of money, time, and motivation for repairs of sources of moisture.
Rob has strived to deal with his symptoms through proper diet and exercise, but in the last 3 years since moving, he has never been 100% despite his 1000% effort to get better. He has ups and downs that mainly relate to his amount of mold exposure. The symptoms he has experienced are very unpleasant, including extreme fatigue, hives, rashes, worsening food allergies, nausea, sharp abdominal pain, sharp headaches, night sweats, muscular fasciculations (twitching), and myclonus (insomnia).
We’ve been moving from place to place trying to find a good night’s sleep for Rob, being allowed to crash in a few friends’ spare rooms out of the kindness of their hearts. However, these places are not designed for persons with sensitivities and are still not ideal for a family of three. Other places we’ve slept in include a tent and our car, which have both been very restful places for my husband so far, depending on where we are situated. As of this September, we’ve made the 24-hour Walmart parking lot our safe haven!
Sleeping in an EMF-, mold-, and chemical-free environment even 3 nights in a row has made a significant difference in reducing Rob’s symptoms to a more manageable level. He now spends significantly more time in the house that made him ill. Running HEPA filters and a dehumidifier (set on 50% humidity at the lowest) has also helped with this. So though there are those who assume avoidance will only increase sensitivities, this is simply not true. Real recovery is possible through avoidance (which makes sense following the “toxic barrel” theory). We need a place where he can catch up and get better!
We’ve been documenting on YouTube our journey of finding safe housing, but we cannot possibly cover everything considering 1) the time we have on our hands to earn our living, 2) the limited time Rob can stand being in our main base of operations without feeling too ill, and 3) the time we have left before our baby is born.
I believe my husband’s condition and those of other victims of MCS, mold, and EMFs to be real and life shattering. Many of these individuals are single, divorced, and living alone. Worst of all, many are ridiculed, mocked, and discredited by conventional doctors. Due to lack of funding, conflicting corporate interests, and scientific skepticism, little research has been done. Because there is also so little help they get, some of them even end their lives after losing all hope.
You can watch a free documentary online about MCS to learn more:
I am coming from the perspective of a victim’s wife, who is fully healthy but very much understanding and supportive of my husband. I would like to at least see one of the victims of MCS, my dear husband, live and have a family and a safe home with me. Once we are whole (or at least in a safe place), we also want to do our part, give back, and start working towards bettering the lives of fellow MCS sufferers around the world!
Also, please consider our child. Our little one needs your help, because we are lacking in strength and opportunity. I can only do so much being pregnant.
We continue to trust in God in all of this, and we are keeping our spirits high! Please bless us with your prayers and whatever else you can send our way.
You can also watch updates on our journey with MCS, mold, and EMF sensitivity on our vlogs: